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Rare Disease Day is personal for me. Living with chronic fatigue syndrome and polycythemia vera has changed how I move through the world, how I practice medicine, and how I show up for my patients. Some battles are invisible, but they are very real. Rare does not mean alone. Rare does not mean unheard. Today we stand together for awareness, research, and compassion. #RareDiseaseDay #RareDiseaseAwareness #ChronicFatigueSyndrome #PolycythemiaVera #InvisibleIllness
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