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“I’m Honestly Scared for My Life” Help Us Find Alyssa a Specialist #RareDisease
The diagnosis isn't the problem — five providers agree it's lymphatic malformation, a condition where lymphatic vessels don't develop properly and fluid builds up. The problem is that every single one says they're "not experienced in this" and refers her somewhere else, while the growth on her face keeps spreading. Dr. Bayo explains the ...
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