But if you distill his message to its purest form, it is beautifully mundane: Performance capture might’ve saved his life, ...

A prenatal base-editing treatment that fixes a single DNA error in the SMN2 gene extended survival in SMA mice, a study found ...

Columnist Connie Chandler shares how a caregiver-patient relationship evolved into a friendship, where both women provide ...

Columnist Connie Chandler writes of a generational disconnect with new SMA patients, but says living fully must remain their ...

In an interview-based study, adults with SMA reported a lack of coordination during their transition from pediatric care once ...

Columnist Helen Baldwin worried the baby who arrived May 18, 1997, would keep everyone awake, but his silence signaled a ...

SMA Europe has launched an online tool designed to help patients, doctors, and others in the spinal muscular atrophy (SMA) ...

For people with spinal muscular atrophy, physical therapy can help support mobility, strength, and quality of life, regardless of SMA type.

The exergame Tales from the Magic Keep aims to boost physical activity, and proved to be a feasible tool for children with ...

The 2023 film “American Fiction” follows a frustrated writer named Thelonious “Monk” Ellison (portrayed by Jeffrey Wright). While his books receive critical praise, his lack of commercial success ...

“Come on, girl, just use your four extra arms!” I often tease my friends like this when we’re trying to accomplish a tricky caregiving task together. Some things would go a lot smoother if we had more ...

For much of the time, the reality for those of us living with a chronic condition like SMA entails having something dangled in front of our faces, just out of reach — which isn’t challenging to do, ...